A group of nearly 20 people smiling together in the Missouri capital.

Deaf Community Comes Together for Legislative Day at the Capitol

Author:

Karyn Houston

Reading time:

5 minutes

Date:

May 31, 2026

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On April 15, members of the Deaf and Hard of Hearing community gathered in Jefferson City for Deaf Legislative Day, an event sponsored by the Missouri Commission for the Deaf and Hard of Hearing (MCDHH).

I participated in the day as both the Deaf and Hard of Hearing Outreach Coordinator at Starkloff and a Deaf person and brought a contingent of fellow St. Louis Deaf and Hard of Hearing people to advocate for our ability to fully participate in everyday life. The idea for this trip came out of a monthly Deaf Professionals Association meeting that I led. Nathan Johnston, Deaf Community Advocate with MCDHH, announced the event and encouraged our community to get involved.

In addition to general advocacy and awareness education about living as a Deaf, Hard of Hearing, or DeafBlind person, we focused on proposed legislation to reduce the barriers and exclusion we navigate in our lives: House Bill 3288 and its counterpart Senate Bill 1637. (Similar bills were introduced in 2025 as HB1568 and SB766.)

Purpose of Proposed Legislation

These bills aimed to establish a statewide communication access services program through MCDHH. These services, such as closed captioning, notetaking, and DeafBlind support, are fundamental needs for Deaf and Hard of Hearing people—they are also protected civil rights.

As noted in the text of the bills, this program would improve compliance with the Americans with Disabilities Act for agencies and businesses by coordinating resources, filling service gaps, and assisting with costs related to accommodations.

The proposed program would do two things: verify qualifications of service providers and establish a fund to help businesses and other organizations offset the costs of accommodations needed for full communication access.

Statewide Service Provider Registry

If you are not an ASL user, how do you know if an interpreter is fluent?

If you are using an interpreter at a doctor’s office, how do you know they will maintain confidentiality about your private medical discussion?

The proposed program would establish standards for training, equipment, and technology, and a registry of communication access service providers who meet those standards. The statewide registry would be a resource for the public to find qualified providers, searchable by service and location.

Communication Access Services Fund

The cost of a service does not change a person’s need to use it, and communication access services are not free.

Many organizations identify cost as their barrier to provide these accommodations, despite our right to them. A state fund could offset these costs. The proposed funding would come from the state, as well as grants, donations, and other sources.

Services that make communication and participation possible benefit all of us. Individuals’ needs and rights are met. Businesses and agencies would gain customers that are excluded. Local service providers’ businesses would grow, generating jobs and revenue.

Showing Our Support

Everyone at the Deaf Professionals Association meeting recognized the importance of this legislation. I recognized an opportunity along with it: bringing the St. Louis Deaf community together.

Jefferson City is a reasonable day trip from St. Louis. Transportation—especially accessible transportation—is always a headache and often a barrier. With Starkloff’s new van (and a driver) we made the opportunity to visit the capitol and advocate available to all in the Deaf and Hard of Hearing community.

The broad impact of this legislation was reflected by our multi-generational group that included students from the Missouri School for the Deaf, adult professionals, and retirees. We departed St. Louis at 7:00 am with a group ranging in age from 15 to 70, united by our united identity and purpose.

During the ride, our community connected in meaningful ways: sharing personal stories about growing up Deaf, discussing the different schools they attended, and reflecting on both shared and unique life experiences. The travel itself became a powerful opportunity for the St. Louis Deaf and Hard of Hearing community to learn from one another and build stronger connections. Coming together for this shared purpose deepened our sense of unity and reinforced the compounded power of advocating together.

Connecting with Missouri’s Leaders

Once we arrived at the capitol, Nathan Johnston (MCDHH’s Deaf Community Advocate) gave a presentation on the importance of this legislation and what a communication access services program would mean for Deaf and Hard of Hearing people.

As Deaf and Hard of Hearing Outreach Coordinator, I gave an overview of Starkloff’s programs. Together with my fellow Deaf professionals we highlighted the innovative and collaborative work we are doing to support our community and expand opportunities in the workforce and beyond.

Photo: Karyn Houston (left), Deaf and Hard of Hearing Outreach Coordinator at Starkloff, and Becky Davis, executive director of Missouri Commission for the Deaf and Hard of Hearing.

Karyn Houston and Becky Davis.

Our Impact

Although these specific bills did not pass, the key components were successfully incorporated into a larger legislative package, helping move the core goals forward.

At the end of the day, we agreed the experience was well worth our time and effort. There was a strong sense of pride in supporting MCDHH’s work and helping raise awareness among legislators about the importance of this bill and the barriers to our full participation in public life.

Deaf Legislative Day was a success: a meaningful demonstration of collaboration, advocacy, and community pride. With our robust turnout and shared commitment as advocates for accessibility, we will continue to grow opportunities for Deaf and Hard of Hearing people across Missouri.

Photo at top of page: Members of the Deaf and Hard of Hearing community who traveled to Jefferson City for Deaf Legislative Day.

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